In September 2009, an important conference took place in Chicago. Takeda sponsored the American Gastroenterological Association (AGA) Education Conference. The goal of the conference was for celiac experts to share information about celiac disease with other doctors, though as the conference name implies, most were gastroenterologists. We all know that the first line of defense for celiac patients is the primary care doctor. The good news is that the many problems and challenges of diagnosing patients with celiac was covered in detail during the two day event. Admitting there is a problem is the first step to correcting the situation – hopefully.
As one would expect, celiac experts like Dr. Peter H. Green and Dr. Joseph Murray were speakers at the conference. However, the most exciting news for me was the fact that Shelley Case was also a featured speaker. Shelley was the only dietitian invited to present at the event – hardly surprising since she is considered the foremost authority on the gluten-free diet in North America. Her topic was “The Gluten-free Diet: What Every Physician Needs to Know”. Almost every doctor I met during my own celiac journey (and most I’ve met since my diagnosis) do not believe that people can eat great food on the gluten-free diet and therefore, most patients won’t follow the diet even with a biopsy diagnosis of celiac. Therefore, some doctors seem to try and avoid diagnosing patients with celiac disease. Thankfully, when Shelley was finished speaking, many doctors scrambled to pick up her book.
Shelley agreed to speak to me with me about this conference even though she is a very busy lady. She is always going somewhere to speak, work with the Canadian Celiac Association and constantly updating her best selling book The Gluten-Free Diet: A Comprehensive Resource. Shelly went over many details of the conference with me recently, but first she shared some interesting news about a similarity between the U.S. and Canada. Most of us know there is a problem getting people properly diagnosed with celiac disease in this country. Shelley reports that Canada doesn’t seem to be doing on so well on that front either. The last survey they did regarding length of time for a celiac diagnosis ws 11.7 years. That was several years ago and they are now analyzing the data from the last such study. Results are preliminary but so far it’s not looking like there has been improvement to shorten that time substantially. At the Chicago conference, there were several issues discussed regarding why many doctors are not giving their patients the proper care and service when it comes to celiac disease. To keep this post a quasi acceptable length, we’re just going to talk bout the blood tests for celiac disease.
Problems plaque the celiac blood tests and doctors not ordering the complete celiac panel (which leads to some people having false negatives on the test) is just the start of it. The full celiac panel is required to be of value when testing for the condition, but some doctors don’t know that. Another drawback is that some patients with celiac test negative on certain parts of the test, due to them having a positive marker on another part of the test. Sounds confusing, right? Yes, that’s another problem. If a doctor doesn’t understand the many nuances involved with the celiac blood tests, they’re going to send many patients away with a clean bill of health. At least they’re certainly going to tell the patient that they do not have celiac, period. To learn more about celiac genetic testing (different than celiac blood tests), read the New York Times take on the topic, as well as the genetic testing article from Shelley’s website.
I’ve met countless people that tested negative on the celiac blood tests but they tried the gluten-free diet anyway. When the diet resolved a host of health issues, they stuck with it. Those people will never know if they have celiac or gluten intolerance because they will never go back to eating gluten to find out. Please forget anything you’ve heard about how much gluten is enough to consume – and how long it must be consumed – in order to be properly tested for celiac disease. The experts now agree that they do not know the answer to either question. We’ll cover the host of problems with the biopsy test next week, including the fact that it might not be the gold standard that doctors have considered for many years.
OK – now for the fun part! Leave a comment below if you would like to win a copy of Shelley Case’s “must have” book The Gluten-Free Diet: A Comprehensive Resource Guide. Shelley has generously offered to donate FIVE of her books for our lucky readers. The deadline for comments is Sunday, February 14th. Winners will be announced on this post on Monday, February 15th. Good luck!
Special thanks to Shelley Case for sponsoring this give-away and most especially for taking the time to speak with me about the conference in Chicago!
When holidays involving food roll around, people with food allergies and intolerances can get a bit anxious about what might be safe for them to consume. Valentine’s Day is one of those days. True, the holiday is also about flowers which thankfully are usually not eaten (except in fancy restaurants). But it’s also about candy and for some, a romantic dinner out. The first time I ever ate out after my diagnosis was on Valentine’s Day. I was determined to not let having celiac keep me from enjoying life, but looking back I don’t recommend this idea to other “newbies” to the diet.
The nice folks from
Next up was the Cornbread & Corn Muffin mix. Since we’d actually been enjoying this mix since it came out last year, we were thrilled to be able to enjoy it with Darn Good Chili this time around. If you’ve ever had Jiffy (gluten) corn muffins, then you know what the Pamela’s Products version tastes like. It’s simply great corn bread, period. For holiday cornbread for dressing, we actually use the Pamela’s Pancake & Baking mix to make cornbread (recipe on Pamela’s website as well). That version reminds me of my Grandmothers southern cornbread – meaning it is perfect for cornbread dressing!
Last up from Pamela’s was the Chocolate Brownie Mix. Because my husband has an aversion to dark chocolate (who knew someone could be allergic to dark and bittersweet chocolate?), we had never tried the brownies from Pamela’s. Obviously making a batch of brownies for one person isn’t an option but for the purpose of this review, I decided to give most of the brownies to gluten eaters at my husband’s workplace. Not only could I review them – I’d get gluten lovers to rate them as well. Not surprisingly, I thought the brownies were perfectly moist, chocolaty and delicious! There are many recipe versions on the bag and I made the original “oil recipe”. Though you might assume that version is dairy free, the allergen statement on the bag says that there might be traces of dairy in the mix, due to processing practices. What did the gluten lovers think of Pamela’s brownies? Everyone who scarfed them up said they were delicious. Many people were unaware that the brownies were gluten-free, which tickles me to no end.
Until I read about
To celebrate the launch of our new gluten free grocery guide iPhone App, we’re giving away 10 free copies to our blog readers. To enter the contest, just add a comment at the end of this post. (Of course, you’ll need to be an iPhone user to actually use the app…) We’ll choose winners next Friday and announce them right here, so enter soon and stay tuned!
Someone at
I can’t thank Shirley enough for posting this excellent recipe. I was actually out of xanthan gum and was concerned that the biscuits would not work, but I took my chances and everything turned out fine. I added an extra tablespoon of cornstarch to the dry ingredients. This does not take the place of xanthan gum but Shirley’s flour mixture has a lot of cornstarch in it so I didn’t think it could hurt. Since I used the Jules flour, there was less cornstarch in my mix. The biscuits mixed up fairly easy with a sturdy bamboo spoon. Per Shirley’s recipe notes, I planned to incorporate some of the minced garlic I used into the batter itself. However, I completely forgot so I just brushed the butter and garlic mixture on the hot biscuits when they came out of the oven. Oh, just the smell alone is killer!