Swedish Study Confirms: Quality Of Life Post-Diagnosis is WAY Better

No one wants to be Mr. Bump!

Thanks to Celiac.com for posting a review of a November study out of Sweden on health-related quality of life, which makes an interesting companion to the study on celiac and depression I wrote about last week.

This study is titled, “Delay to celiac disease diagnosis and its implications for health-related quality of life,” and it examined pretty much exactly what you’d expect. Slightly more than 1,000 members of the Swedish Society for Coeliacs completed a survey and their results were translated to quality-adjusted life year (QALY) scores. These scores were then compared to ones from a survey of the general population.

Unsurprisingly, undiagnosed celiac disease significantly lowers a person’s health-related quality of life (HRQoL). The average score in the year prior to diagnosis was 0.66, whereas the general population in Sweden scores a 0.79.

The overwhelming majority of responding celiacs reported compliance with the gluten-free diet (96%) — and, happily, the overall score for respondents increased to 0.86 after diagnosis and treatment.

The full study also took a look at gender, and their, “results confirm that CD females experience a lower HRQoL than males,” both before and after diagnosis.

Taken as a whole, the study is just one more clear indication that testing for celiac is important. The average time-to-diagnosis continues to lessen thanks to increased awareness, but its still several years on average.

Do you know anyone who is refusing to get tested? If so, you might want to show them these numbers (or the celiac.com analysis)!

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