U Chicago Celiac Disease Center Share News of Updated Diagnostic Criteria

Are you familiar with the University of Chicago’s Celiac Disease Center?

If not, check them out. Their website is full of good information whether you’re newly diagnosed, old-hat at all things gluten-free, or just wondering whether or not gluten is giving you problems.

Speaking of which: if you’re newly diagnosed via biopsy, the center will send you a care package full of tasty gluten-free samples and other materials. Just give them a call (see more here).

The Celiac Disease Center also puts out a free quarterly e-newsletter, and this quarter’s headline story was worth sharing: Evolving Diagnostic Criteria for Celiac Disease.

You’ll have to download the PDF if you’d like to read the article, and I don’t want to steal the writers’ thunder, but I do want to point out a few highlights to entice you over to the full article:

  1. The article was written by Dr. Stefano Guandalini, an internationally-recognized expert on celiac disease, and Ronit Rose of the Celiac Disease Center.
  2. The European Society for Pediatric Gastroenterology, Hepatology and Nutrition (ESPGHAN) is the body largely responsible for codifying diagnostic criteria for celiac disease. They created criteria in 1969, and revised them in 1990 in light of new research.
  3. Now, given all the new, new research, the critera have been modified to be, “sensitive to the fact that today we know celiac disease is an immune disorder affecting not just the intestine, and that doctors see many more patients developing celiac disease who are either completely without symptoms or have symptoms that are far removed from the gastrointestinal tract.”
  4. The new criteria are slightly different for children who are symptomatic and asymptomatic, and provide for a different course of action depending on the child in question. In some traditionally symptomatic cases, diagnosis can be made without need for biopsy.
  5. Although the criteria are focused on children, they will likely be accepted as an appropriate standard for adults as well.

What was your (or your child’s) path to diagnosis like? Was there a biopsy?

2 thoughts on “U Chicago Celiac Disease Center Share News of Updated Diagnostic Criteria”

  1. I was never officially diagnosed with Celiac, but the Dr says that what I am doing going gluten free is working. They only tried to do a blood test, but I had already been gluten free for two months. They didn’t even know how to handle the testing which I will be honest left me doubtful. After they did the test, I FOUND on a the celiac website that you have to be consuming gluten for 4 weeks for the test to be accurate. The problem is that even the smallest amount of gluten, and I have a migraine so bad I am in the hospital on Demerol shots, not even knowing where I am for 3 days at a time. That is not to mention a lifetime of other symptoms! That is just the first and worst of them.
    My son is Autistic and does best on a gluten free diet as well, and my daughter who is only two started having symptoms like my own as well, so our whole house has gone on this restrictive diet. This has all been within the last 6 months, so the “culture shock” is still in full swing. Traveling is literally HELL, not because of trying to find gluten free foods, but trying to find places we will not get cross contamination, thus spending our entire trip in agony. Thank you for collecting these resources and founding your ideas. I hope this will be a great help to my family and friends.

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